Friday 8 April 2016

An Update and An Invite

Caroline Reyes-Loughrey Photography
It's been three months since the failed Nivolumab clinical trial when I first came back for a check up at the Chelsea and Westminster Hospital. I immediately notice the change of staff at the ward, I used to know everyone there. I got a little disoriented but then I finally see someone I recognise and I look for my Oncologist. She gives me a hug and tells me I'm in the wrong place. I have forgotten I'm now supposed to go to the outpatients department instead. Well, this isn't the worse of these episodes, one time I came for a scan at the right time, but a day earlier, such are the perils of chemo brain, a constant struggle to be on track and in sync with the healthy world. 
I've checked myself in on the computerised reception system and from the hallway I see my Oncologist waving, I apologised for my tardiness, told him I'd been at the chemo ward first. After the usual medical routine, we talked about what to expect now that I'm not having treatment. In a gist he said I will be increasingly dependent on people to assist or do things for me. During the worst part of the cancer, hospital transport was the only way I could and was allowed to get around. I needed a wheelchair when I'm out and I had to be on oxygen 24/7, even in the bath. My immune system was non existent so even taxis are not encouraged. Like that boy in a plastic bubble, at that point, I won't be able to handle a virus or bacteria. I have solved many Sudoku puzzles whilst waiting for transport, they get really busy, glad I'm over that. So, I proudly announce that I used the London Underground and a bus to get there. He was pleased, the nurse suggested I wear masks if I do that. He then said maybe we should do an X-ray, just to look. All that radiation, just to look, I'm not a TV show, I declined saying they're not giving me treatment, so they're not allowed to look in there. I booked my next appointment and ended the meeting. It was a crisp and sunny winter day in London so I decided to visit my favourite shops along Fulham Road.
I love the feel of the winter sun on my face. Two places I go to, that quaint French market that sells produce, good seafood, French tapas, fresh olives, etc, and of course French groceries, I love that place. Then there's this Italian shop that sells cooked Italian food and produce and groceries from Italy, I always stop by there too when I'm well enough. One last stop is the juice man in South Kensington, I ask him to make a fresh liter of pure green juice whenever I come around. This was four months ago, things have shifted since.
As I walk into his office, my Oncologist gestures for me to take a seat then says, "approaching three years, trouble!" , that's the moniker he has given me. He was all smiles and looking at me in awe, why, because I'm doing so much better than predicted, though I admit I did put a little effort that day to look good and to surprise them and to prove to myself that I still look normal. He probably told me I'm amazing about 10 times during the meeting, funny. I may still look well but I have had to modify and pace a lot since our last check up. I'm getting increasingly breathless and I get on my oxygen most nights, sometimes overnight. I walk less, but I can still get around on my own. The healing protocols I designed for myself are hopefully keeping the Cancer at bay and myself stable. Cancer is a full time job, it occupies my whole day and night. When you're dealing with Cancer, you and the people around you need to be ready to compromise with you at any given time, you can't predict how your day is going to play out, you just wish you'll be good enough for what you planned. I'm still struggling with the side effects of chemo, mainly brain fog - chemo brain. The past two months were specifically challenging which is why my last post was in February. The side effect from the Nivolumab drug, pain and general weakness on my upper arms, that's more pronounced now, though not debilitating yet, I just can't carry much which is probably a good thing because then I can't shop too much. Sometimes putting clothes on can be a pain too, but like anything else, modify. My Oncologist tends to credit my buoyancy to a possible late reaction from Nivolumab, but I just don't think so. We arranged a CT scan on the 20th of April, this time I agreed. 
I have a list of activities I do for days when I'm breathless or lack energy but I just can't do nothing, unless in meditation and tapping. I'm finally caught up with my Photography, uploaded new images on the website and even launched a new Spring Gallery - Cherry Blossoms, that's me slowing down. My photography website is my life's tapestry, I was in every single one of those photos obviously. I realise it will be quite a task for me now to be lugging equipment and heavy cameras around, but I can't give this up, so now I will focus on photography I can do from home, a change in subject - Food, which I have some photo stock of, and still life, florals maybe, like the new series. This art form just makes me so happy, I will continue doing it. This is an invite to visit the site, you can comment on the images if you use your facebook login. I have everything from travel scenes, animals, florals, black and white, even street art. I would appreciate help promoting the site, would be really a boost to my efforts, Photography is a big part of who I am. A sad part of the journey is having to give up my then Photography, Cooking, and Travel websites, having been given a chance to do it again even on a smaller scale, is such bliss. Thank you. 
It's been almost three years since diagnosis, a really really long three years, but my resilience has kept me steadfast and standing. I don't function 100% but I'm living.
Thank you to everyone who continues to pray for me, and everyone who wishes me well. Take care. 

At Any Given Moment, You Have The Power To Say This Is NOT How The Story Is Going To End

Pittenweem Fishing Village Scotland in Black and White by Caroline Reyes-Loughrey

21 comments:

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    3. Glory be the Name of the( LORD JESUS)
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      After some days of drinking the herbs medicine i feel changes in me the pain was no more,i went to hospital to see the result that the Doctor we give me, the Doctor was surprise the Lungs cancer was no more am really happy now that the (LORD JESUS) has finally hear my prayer .
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  7. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are David Clara I’m a citizen of United Kingdom, My younger sister was sicking of breast cancer and her name is David Sandra I and my family have taking her to all kind of hospital in UK still yet no good result. I decided to go to the internet and search for cancer cure so that was how I find a lady called peter Lizzy she was testifies to the world about the goodness of a herbal man who has the root and half to cure all kind of disease and the herbal man email was there. So I decided to contact the herbal man for my younger sister help to cure her breast cancer. I contacted him and told him my problem he told me that I should not worry that my sister cancer will be cure, he told me that there is a medicine that he is going to give me that I will cook it and give it to my sister to drink for one week, so I ask how can I receive the cure that I am in UK, he told me

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  10. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are David
    Clara I’m a citizen of United Kingdom, My younger sister was sicking of
    breast cancer and her name is David Sandra I and my family have taking her
    to all kind of hospital in UK still yet no good result. I decided to go to
    the internet and search for cancer cure so that was how I find a lady
    called peter Lizzy she was testifies to the world about the goodness of a
    herbal man who has the root and half to cure all kind of disease and the
    herbal man email was there. So I decided to contact the herbal man for my
    younger sister help to cure her breast cancer. I contacted him and told him
    my problem he told me that I should not worry that my sister cancer will be
    cure, he told me that there is a medicine that he is going to give me that
    I will cook it and give it to my sister to drink for one week, so I ask how
    can I receive the cure that I am in UK, he told me

    That I will pay for the delivery service. The courier service can
    transport it to me so he told me the amount I will pay, so my dad paid for
    the delivery fee. two days later I receive the cure from the courier
    service so I used it as the herbal man instructed me to, before the week
    complete my sister cancer was healed and it was like a dream to me not
    knowing that it was physical I and my family were very happy about the
    miracle of Doctor so my dad wanted to pay him 5 million us dollars the
    herbal man did not accept the offer from my dad, but I don't know why he
    didn't accept the offer, he only say that I should tell the world about him
    and his miracle he perform so am now here to tell the world about him if
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  11. Glory be the Name of the( LORD JESUS)
    My name is Elizabeth smith from UNITED STATE OF AMERICAN. I want to thank the Almighty GOD for using a herbalist man Dr sakura to cure my lungs cancer with his herbal medicine.
    i have been sicking of Lungs cancer for the past three years,going for different kind of hospital to cure my Lungs cancer, I Always take treatment giving to me in the Hospital still yet no cure.Am a christian that always believe in God that one day He we surely hear my prayer.On a faithful day i was searching on the internet how to get cure from lungs cancer, i got a testimony from David Clara telling everyone about Dr sakura herbal medicine that cured her sister breast cancer and capable to cure any deadly diseases, i was scared because the doctor is from Nigeria, i contact Clara David about my problem that am facing for some years now she encourage me and tell me to contact Dr sakura that his a great herbalist that God has sent to her each and everyone of us.I have to give him a try, i contacted him and tell him my problem that am facing and he told me what to do which i did and also send him money for shipping the Herbs medicine to me true EMS delivery .i receive the herbs from the EMS office. i use it as Dr sakura instructed me too.
    After some days of drinking the herbs medicine i feel changes in me the pain was no more,i went to hospital to see the result that the Doctor we give me, the Doctor was surprise the Lungs cancer was no more am really happy now that the (LORD JESUS) has finally hear my prayer .
    i went back to Dr sakura and info him about the miracle he has done in my Life i could never forget .
    My beloved brothers and sister if anyone of you or your relative is having problem that could not solve from the hospital please contact Dr sakura and save a soul
    Via mail Or whats app Him dr.sakuraspellalter@gmail.com +2348110114739 you can mail me if you need more information smithelizabeth11223@gmail.com

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  14. I am John Danilla from UK( northern ireland), i want to share a
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  15. I am Susan Afread, from New york, USA I can’t stop thanking DR Ewan for
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  16. Do you know that there is a great herbal doctor who can cure any deadly disease like herpes, hiv/aids, cancer, syphilis, madness, hepatitis b, STD e.t.c. well my main purpose of writing this to the whole world is about the great deeds DR Owa Egbe.did for me. I was diagnosed of a deadly disease called HIV/AIDS since the year 2000, ever since then i have been taking medications on till i met a great herbal doctor. though i never believed in Herb medicine, i saw many testimonies on how he cured so many people and i decided to contact him. so i contacted him through his email, he gave me a form to fill, i filled it and send it back to him and then he told me that he would require some items to prepare a herbal medicine for me. i did'nt know were to find the items, and he told me that the only alternative is to help me get the items and he helped me purchase the items from the items seller. i promised my self to do anything to get cured, so i sent him the money and he prepared a medicine for me and he told me how i will be taking it. he asked me to have faith and believed in him which i did, 7 days latter he asked me to go for a check-up, when i did the check-up i was tested HIV Negative. All thanks to DR.Owa Egbe. if you are passing through suffering and hardship and you need a way out , i advice you kindly contact him via his email on drowaegbeherbalcurehome@gmail.com. you can also WhatsApp +12314865168.
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  18. How I became a happy woman again
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